Lea Ann here! Look at me...finally posting to the blog all by myself! Typing and everything...although a little slow with the right hand still. I had my re-evaluation for PT and OT this week and my recovery continues to be amazing. I did the same tests I did when I first started and the results were definitely different! For example, in looking at the fine motor skills in my right hand, there is a peg board with 16 small pegs that you pick up and put in the holes then remove one by one. My time was a very frustrating minute and a half and this time it took me a mere 23 seconds!!! For PT one test to judge endurance and recovery time is doing step ups onto a box at a set pace for 3 minutes then check your heart rate after a minute of rest. Initial eval showed my heart rate at 111 beats per minute after the rest and this time it was at 86. So all the tests basically show that my strength, endurance, balance, coordination and so on are progressing at the best rate I could ask for! YAY!
This week I have been fighting some extra fatigue for some reason. My INR (blood thickness) count was low again and continues to frustrate the docs on determining a therapeutic dosage of the blood thinner. I've been told the fatigue could be associated partially with my blood being a little thick, but also with other factors like weening off the steroids, maybe having some kind of bug, an overly worrisome mom and husband...oh, wait I may have made that reason up! :) Anyway, I'll keep you all posted next week during our trip to Mayo. Jake and I head up there Sunday. Hopefully we'll come back with more answers! And the 900+ pages title...that's how long my medical records are from my hospital stay! Had to go pick them up to take with us to Mayo...I skimmed them and hope the docs at Mayo get more out of them then I can! The terminology lost me after "Heuser is a 26 year old female..."
Also, had a couple more interviews for local stories...here are some pics from when they came to the house. It will air on the 19th and we'll link it to the blog.
3 comments:
Hey Lea Ann - - so great to hear from you! You continue to amaze us all! Have been keeping up with your blogs even tho I haven't been writing. We will keep you in our prayers this coming week as you go through all the testing and pray for some good answers.
Grandpa is busy showing off his treasures at the "Older Iron" show yesterday and today and hoping for no rain.
Keep up the good work and will be looking forward to seeing you here in a couple of weeks. Love to you both. Grandma and Grandpa Friga
Hi Lea Ann,
I am Regina Reeder, your Dad’s first cousin, from Norfolk, Virginia. Uncle Tony and Aunt Barb are so awesome and dear to me. Your Dad and Mom and I were reacquainted in the last two years when I visited Oran after many years. In my conversations with your parents and grandparents, your name came up a lot. They all are so proud of you.
I’ve been following your blog and you are inspiring me on my new journey with recently diagnosed Parkinson’s disease. I so understand the hands not working, trying to type (I am a webmaster for the Navy), fatigue, balance issues, and going to physical therapy. I feel like my physical therapist is my new best friend. I work on the pegboards as well as wobble board for balance. It’s a hoot; I’ve progressed to standing on one foot on the wobble board while playing catch with a soccer board. When I am doing all this, you pop into my mind and I feel not alone as I go through the drills.
I’ve shared your story with my PT guys and friends and all wanted me to pass on their concerns, regards, but most of all keep on “keeping on”.
Lea, That's awesome!
So glad to hear about the positive evals and I look forward to hearing about your Mayo Trip.
*Hugs*
Dawn
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